Home > Web links

Web links

AARP Grief and Loss
Provides extensive information, resources and support including chat rooms, consumer tips, online journaling and information on support groups. Additional resources available to all were added after 9/11/02.
http://www.griefandloss.org/

Alive Alone
Alive Alone is an organization for the educational and charitable purposes to benefit bereaved parents, whose only child or all children are deceased, by providing a self-help network and publications to promote communication and healing, to assist in resolving their grief, and a means to reinvest their lives for a positive future.
http://www.alivealone.org/

American Academy of Pediatrics
http://www.aap.org/

American Association of Suicidology
http://www.suicidology.org/

American Cancer Society, Inc.
Find everything you need to cope with cancer and its effects.  How to stay healthy after treatment and share your experiences.  Get facts on cancer, risk factors and prevention.
1599 Clifton Rd., N.E., Atlanta, GA 30329; tel. 800-ACS-2345.
http://www.cancer.org

Americans for Better Care of the Dying (ABCD)
Every dying person needs to be able to count on excellent care at the end of life. ABCD aims to improve end-of-life care. Site provides news, public policy, resources, reading room and online conferences.
http://www.abcd-caring.org/

Association for Death Education and Counseling: A multi-disciplinary professional organization dedicated to promoting excellence in death  education, bereavement counseling, and care of  the dying.
http://www.adec.org

Association of American Sickle Cell Disease
http://www.sicklecelldisease.org/

Association of Pet Loss and Bereavement
http://www.aplb.org/

Before I Die, PBS
Before I Die: Medical Care and Personal Choices premiered on April 22, 1997. The program explores the medical, ethical, and social issues surrounding end-of-life care in America today. This Web companion piece features original reporting (real life stories, sidebars) by health writer Janet Firshein, 1995 Kaiser Media Fellow. 
http://www.thirteen.org/bid/

Bereaved Parents of the USA
This is a nationwide organization designed to aid and support bereaved parents and their families who are struggling to survive their grief after the death of a child. Any bereaved parent, sibling, or grandparent is eligible to become a member of the BP/USA.
http://www.bereavedparentsusa.org/

Cancer Care Connection
A non-profit organization that combines compassionate, personalized support with the latest advances in technology. A free public service to help consumers find local services and internet resources. Located at Three Innovation Way, Suite 210 in Newark, DE 19711. Phone:302-266-8050 or 866-266-7008.
http://www.cancercareconnection.org/

The Candlelighters Childhood Cancer Foundation® (CCCF)
CCCF is a national nonprofit membership organization whose mission is to educate, support, serve, and advocate for families of children with cancer, survivors of childhood cancer, and the professionals who care for them. Makes available newsletters, bibliographies, and other materials.
http://www.candlelighters.org/

The Center for Grieving Children and Teenagers
The Children's Room offers hope and quality of life to bereaved children and those who are part of their lives. In this safe and caring environment, children, teenagers, and their families can receive the support they need while grieving the death of a loved one.
http://www.childrensroom.org/

The Centers for Disease Control and Prevention (CDC) is recognized as the lead federal agency for protecting the health and safety of people - at home and abroad, providing credible information to enhance health decisions, and promoting health through strong partnerships.
http://www.cdc.gov/

The Compassionate Friends
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive. The Compassionate Friends is a national nonprofit, self-help support organization that offers friendship and understanding to bereaved parents, grandparents and siblings. There is no religious affiliation and there are no membership dues or fees.
http://www.compassionatefriends.org/

Corporate Angels Network
Corporate Angels Network provides free air transportation for cancer patients traveling to and from recognized treatment centers in the United States without regard to their financial resources.
http://www.corpangelnetwork.org/

Children's Hospice International offers information on children's hospice care. 1-800-24-CHILD
http://www.chionline.org/

Children's International Project on Palliative/Hospice Services (ChIPPS)
National Hospice and Palliative Care Organization
Offers information on the program to enhance the science and practice of pediatric hospice and palliative care.
http://www.nhpco.org/

City of Hope Palliative Care Resource Center
The purpose of the COHPPRC is to serve as a clearinghouse to disseminate information and resources that will enable other individuals and institutions to improve the quality of pain management. 
http://prc.coh.org/

Compassion Books maintains over 400 resources to help children and adults through serious illness, death, loss, grief and bereavement. Reviewed and selected by knowledgeable professionals.
http://www.compassionbooks.com/

Cremation Association of North America
http://www.cremationassociation.org/

CureSearch
http://www.curesearch.org/

Delaware End-of-Life Coalition
The mission is to strengthen collaboration between the public and professional communities of Delaware regarding end-of-life issues and to serve as an umbrella organization to:

  • Share resources and information
  • Promote public and professional education
  • Foster innovations in provision of care
  • Address public policy
  • Increase cooperation among various services that provide end-of-life services

http://www.deolc.org

Delaware Hospice
When recovery is no longer possible, Delaware Hospice can help. Focusing on care, not cure, Delaware Hospice ensures that patients and their families receive the care, comfort, and support they need at a time when it's needed most. Pain and symptom management and emotional support are provided in the familiar surroundings of home or a homelike setting (nursing home). The Children's Program provides support to help children and their families who are dealing with the loss of a loved one. "New Hope" is Delaware Hospice's program designed especially for grieving children (see Summer Camps for more information).
http://www.delawarehospice.org/

The Dougy Center was the first center in the US to provide peer support groups for grieving children.  The Center shares what it has learned from over 13,500 children, teens and families they've served since 1982.
http://www.dougy.org/

The Elizabeth Glaser Pediatric AIDS Foundation is the leading worldwide nonprofit organization dedicated to identifying, funding and conducting pediatric HIV/AIDS research, and now other serious and life-threatening diseases affecting children.
http://www.pedaids.org/

The End of Life: Exploring Death in America
Transcripts; Resources; Bibliography; Readings; Tell Your Story; Feedback.  This program is a special series from National Public Radio's All Things Considered.
http://www.npr.org/programs/death/

End of Life Care for Children and Their Families: Ethical Dimensions
http://www.HELIX.com

End-of-Life Nursing Education Consortium (ELNEC) Project
The End-of-Life Nursing Education Consortium (ELNEC) project is a comprehensive, national education program to improve end-of-life care by nurses, and is funded by a major grant from The Robert Wood Johnson Foundation. Primary project goals are to develop a core of expert nursing educators and to coordinate national nursing education efforts in end-of-life care.
http://www.aacn.nche.edu/elnec/

Federal Trade Commission
http://www.ftc.gov/

Finding Our Way: Living with Dying in America
Finding Our Way: Living with Dying in America is a fifteen-week newspaper series which ran September 10 through December 17, 2001. The series was distributed throughout the country by Knight Ridder/Tribune Information Services. The Finding Our Way national public education initiative is focused on bringing practical information to the American public regarding end of life and its surrounding issues.
http://www.findingourway.net/

Funeral and Memorial Societies of America (consumer rights organization)
http://www.funerals.org/

Funerals: A Consumer's Guide
http://www.ftc.gov/bcp/conline/pubs/services/funeral.htm

Grief and Loss Resource Center
It is the hope of this site to provide a place where the issues of grief, grieving, transition, recovery and healing are addressed. Resources for ministers, police, EMS personnel, doctors, nurses, counselors, and other professionals are provided.
http://www.rockies.net/~spirit/grief/griefA1.html

GriefNet is an Internet community of persons dealing with grief, death, and major loss. They have 37 e-mail support groups and two web sites. GriefNet has an integrated approach to on-line grief support providing help to people working through loss and grief issues of all  kinds. Their companion site, KIDSAID, provides a safe environment for kids and their parents to find information and ask questions.
http://griefnet.org/

Griefs Heart
Many have stories to tell of journeys in grief toward lasting love for a family member, companion or friend. Surely these are among the most precious stories we hold within us. Please share a story on this web site about finding lasting love through grieving. Tell what it has been like to: know and love an irreplaceable someone who has died; reach through the pain of separation; reclaim meaning not canceled by death; and embrace and use legacies left to you.
http://www.griefsheart.com

Growth House is an award winning site with resources about life-threatening illness and end of life care. Their primary mission is to improve the quality of compassionate care for people who are dying through  public education and global professional collaboration.  Includes information on helping children with grief and serious illness. 
http://www.growthhouse.org/

Hospice Foundation of America
Offers information to professionals and families about caregiving, terminal illness, loss and bereavement.
http://www.hospicefoundation.org/

Hospice & Palliative Care Federation
The Hospice Federation of Massachusetts provides this booklet to answer your questions and help you navigate this new phase of life. Hospice, they note, may well become one of your most important resources, whether you are a patient, family member or friend seeking to help someone dear to you. Site sponsored by the Robert Wood Johnson Foundation.
http://www.hospicefed.org/

Hospice Net addresses patients and families facing life threatening illness.  Resources for patients, caregivers and specific information on children and teenagers experiencing grief.
http://hospicenet.org/

International Association of Pet Cemeteries
http://www.iaopc.com/

Kennedy Institute of Ethics
Resource for ethical issue related to death and dying. Has links to the National Reference Center for Bioethics Literature and the BIOETHICSLINE database containing over 9,000 citations related to death and dying issues.
http://georgetown.edu/research/kie/site/index.html

KIDSAID is a safe place for kids to share and to help each other deal with grief about any of their losses. It's a place to share and deal with  feelings, to show artwork and stories, to talk about pets, to meet with one's peers. Owned and run by griefnet.org.
http://kidsaid.com/

Leukemia Society of America
http://www.leukemia.org/

Living Wills
http://www.uslivingwillregistry.com/

Locks of Love
A charity that provides hairpieces to financially disadvantaged
children under the age of eighteen with medical hair loss. 
http://www.locksoflove.org/

Love, Josh
The fifth documentary in HBO Family’s Parent Handbook series, Love, Josh documents a year in the life of a fifteen year old whose father has died from liver cancer. Over the course of a year, starting at his dad’s memorial service, Josh reveals his feelings to the camera: pain, disbelief, anger, emptiness, as he tries to rearrange the world without his father. As the year passes, Josh comes to realize that memories are his treasures for they're all he has to connect to his father.
http://www.hbofamily.com/programs/parent_handbook/love_josh.html

Mothers Against Drunk Driving (MADD) looks for effective solutions to the drunk driving and underage drinking problems, while supporting those who have already experienced the pain of these senseless crimes.
http://www.madd.org/home/

Make a Wish Foundation
Make a Wish Foundation grants the wishes of children with life-threatening illnesses to enrich the human experience with hope, strength, and joy.
1-800-722-WISH
http://www.wish.org/

National Cemetery Administration
Information on the Veteran's Administration National Cemeteries and other burial benefits.
http://www.cem.va.gov./

National Center for Death Education
The National Center for Death Education (NCDE) promotes, creates, and disseminates understanding and research in thanatology, the science of death studies. Their mission is to assist people in caregiving professions to develop creative and useful skills for coping and growing with dying, death, bereavement, and loss. The resources of the National Center library are open to students, researchers, and practitioners. The National Center also academically supports the curriculum of The New England Institute of Funeral Service Education at Mount Ida College and individuals seeking continuing professional education in related career fields.
http://www.mountida.edu/sp.cfm?pageid= 307

National Funeral Directors Association (provides links to caregiving websites)
http://www.nfda.org/resources/

National Hospice and Palliative Care Organization
Provides a search for hospice and palliative care, as well as statistics, resources and information. 
http://www.NHPCO.org/

National Children's Cancer Society
http://www.nationalchildrenscancersociety.com

National Library of Medicine and the National Institutes of Health offer Medline Plus Health Information on death and dying.  Includes news, research, laws and policies, children issues and resources in Spanish.
http://www.nlm.nih.gov/medlineplus/deathanddying.html

Oregon Hospice Association, Inc.
The Oregon Hospice Association is a 501(c)(3) public benefit membership organization dedicated to ensuring that all Oregonians have access to high quality hospice and comfort care.
http://www.oregonhospice.org/

Parents of Murdered Children
POMC® provides the ongoing emotional support needed to help parents and other survivors facilitate the reconstruction of a "new life" and to promote a healthy resolution. Not only does POMC help survivors deal with their acute grief, but with the criminal justice system as well.
http://www.pomc.com/

Partnership for Caring: America's Voices for the Dying
A nonprofit organization devoted to raising consumer expectations for excellent end of life care. Provides counseling information, publications and videos, advance directives tailored to each state's legal requirements.
http://www.partnershipforcaring.org/

Pediatric Pain-Science Helping Children
Offers resources, inormation and self-help for parents.
http://is.dal.ca/~pedpain/pedpain.html

Project on Death in America has a mission to understand and  transform the culture and experience of dying and bereavement through initiatives in research, scholarship, the humanities, and the arts, and to foster innovations in the provision of care, public education, professional   education, and public policy.
http://www.soros.org/death/

Robert Wood Johnson Foundation
The RWJ Foundation is dedicated to improving the health and health care of all Americans.
http://www.rwjf.org/

SLAM (Students Learn about Mortality)
Slam is a prevention initiative of the New Castle County Police Department Emergency Medical Services Section. The program is powerful and graphic, and uses the perspective of paramedics and law enforcement officers to illustrate the consequences of motor vehicle crashes in our community.
http://www.co.new-castle.de.us/ems/home/webpage3.asp

Sickle Cell Information Center
http://www.scinfo.org/

Supporting Kidds: The Center for Grieving Children and Their Families
Resources to help parents understand what children are going through concerning death and grieving. The mission of Supporting KIDDS is to provide a compassionate pathway to healing for grieving children and their families, and to empower the community to support them in the grieving process.
http://www.supportingkidds.org

Thanatolinks (links related to death and dying)
http://www.lsds.com/death/

Touchstones
Touchstone provides a supportive environment for children, adolescents and their families who have experienced the death of a parent, sibling or close family member. Offers adults page, kids page and an area to ask questions or post artwork and writing/poetry.
http://www.touchstonecenter.org/

The Wellness Community - Delaware
A free program of support, education and hope for people with cancer and their loved ones. The Wellness Community - Delaware is dedicated to helping people with cancer and their loved ones by providing professionally led programs of emotional support, education and hope as an integral part of conventional medical treatment. More than 80% of the money they raise goes directly to programs, and all of their programs are provided free of charge
.http://www.wellnessdelaware.org/

United Network for Organ Sharing (includes become a donor)
http://www.unos.org/

WHYY Wider Horizons
A wealth of resource information about caring for the dying and bereaved including a regional listing of support groups, consumer and professional education, books on end of life and grief. Resources related to On Our Own Terms: Moyers on Dying in America.
http://www.widerhorizons.org

Willowgreen Resources for Loss and Grief (includes videotapes)
http://www.willowgreen.com/

U.S. Department of Health and Human Services: Tips for Talking to Children and Adolescents about Disasters.
http://www.mentalhealth.org/cmhs/EmergencyServices/after.asp

 

 

Disclaimer | Copyright ©2008. Site maintained by the Delaware Death Education Task Force of the Delaware End-of-Life Coalition through the Division of Special Programs, College of Health Sciences, University of Delaware. Page last modified: Thu, Nov 02, 2006, 09:53:56 EST