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Center for Disabilities Studies : Resources

University of Delaware Links
Center for Disabilities Studies University Education Resources

Support Services in Delaware
Advocacy Organizations/Provider Agencies
Organizations without websites
State Agencies

National Disability Links
Employment & Training
Family Supports
General Information - Disability Awareness
Health
Policy & Legislation
Research
Self-Advocacy
Support and Services



University of Delaware Links

The Academic Enrichment Center (AEC), a unit of the Office of Undergraduate Studies, assists the University of Delaware with the retention of students through its collection of academic support programs, services and activities. In many cases, the AEC coordinates its efforts with other University offices to insure a comprehensive set of services.

The Office of Disabilities Support Services is committed to the principle that no qualified person shall, on the basis of disability, be excluded from participation in, be denied the benefits of, or be subjected to discrimination with regard to the programs, activities, or services provided by the University. The office helps to meet the unique educational needs of students with documented disabilities and eliminate the physical, programming and attitudinal barriers that can impede academic success.

The Minor in Disabilities Studies offers courses taught by an interdisciplinary team of University of Delaware faculty associated with the Center for Disabilities Studies.

The Morris Library is equipped with up to date accessibility and assistive technologies for students with disabilities.

Center for Disabilities Studies University Education Resources

Minor in Disabilities Studies is a unique opportunity for undergraduate students to pursue an understanding of the needs and challenges of individuals with disabilities and to relate these issues to the student’s major field of study


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Support Services in Delaware

Advocacy Organizations/Provider Agencies

ADAPT Delaware is working to help people get out of institutions, nursing homes and State Schools.

Amniotic Banding of Delaware website is a place to share information and offer support about Amniotic Banding Syndrome (ABS), a rare birth defect.

The Arc of Delaware is an organization of and for people with mental retardation and related developmental disabilities and their families devoted to promoting and improving supports and services for people with mental retardation and their families.

Autism Delaware works to improve the lives of people with autism and their families through education, advocacy, and raising public awareness in order to promote lifelong opportunity and community acceptance for people with autism.

Child, Inc. provides shelters, domestic violence treatment programs, specialized foster care, prevention programs such as parenting classes and assistance, and community advocacy for children and their families.

Children & Families First counselors, licensed clinical social workers, parent educators, outreach workers and medical personnel work to strengthen families and communities.

Delaware Assistive Technology Initiative (DATI), which is now part of the Center for Disabilities Studies, focuses on improving public awareness and access to information, funding for assistive technology devices and services, training and technical assistance, and coordination of statewide activities.

Delaware Family Voices/Family to Family Health Information Center (DE-F2F) works to achieve family-centered care for all children and youth with special health care needs and/or disabilities. As part of a national network, Delaware Family Voices provides families with tools to make informed decisions, advocates for improved public and private policies, builds partnerships among professionals and families, and serves as a trusted resource on health care.

Delaware Foundation Reaching Citizens With Cognitive Disabilities (DFRC) is a well-respected Delaware foundation dedicated to raising funds and consciousness in support of programs that enrich the lives of Delawareans with cognitive disabilities. Established in 1956, the private, nonprofit organization is dedicated to identifying and funding programs based on community need.

The Delaware Learning Resource System (DLRS) is a statewide network of centers that provide resources and services to help educate children, particularly those with special education needs.

Delaware Lifespan Respite Care Network works to assure that children and adults with disabilities or special needs and their caregivers have easy access to quality, affordable respite care.

DelARF is a statewide membership association of private community organizations provides vocational training, employment, residential, case management, medical, adult day care, and clinical rehabilitation to people with disabilities.

Delaware Helpline is a toll-free service, which provides information on state government agencies and referrals to community resources. 1.800.464.4357

The Delaware Developmental Disabilities Council addresses the unmet needs of people with developmental disabilities through system-wide advocacy, planning and demonstration projects.

The Disabilities Law Program (a special project of Community Legal Aid Society, Inc.) provides advocacy services to Delaware residents with physical or mental disabilities.

The Down Syndrome Association of Delaware promotes the general welfare of individuals with Down Syndrome by serving as a source of support, acceptance, encouragement, understanding and information for their families, professionals, and friends.

The Exceptional Children Group provides the leadership to ensure that Delaware delivers an effective system of education for exceptional children that is in full compliance with federal and state laws.

The Freedom Center for Independent Living works toward equality and inclusion for people with disabilities through programs of empowerment, community education, and systems change.

Governor’s Advisory Council For Exceptional Citizens (GACEC) provides leadership through advice giving and advocacy for the education of and amelioration of unmet needs of citizens of all ages who are exceptional.

Independent Resources, Inc. (IRI) is a non-residential, private, non-profit, consumer controlled, community-based organization providing services for advocacy by and for persons with all types of disabilities.

Diann Jones, MBA, Special Needs Estate Planner, provides special needs planning services to families, assistance finding resources, a newsletter, and confidential intake meetings. (If website is not available, contact Diann Jones at (302) 530-1234 or jonesd93@nationwide.com.)  

The Leukemia & Lymphoma Society is the world’s largest voluntary health organization dedicated to funding blood cancer research, education and patient services. Information is available on the national site for Delaware’s chapter.

The Lower Delaware Autism Foundation merged with Autism Delaware i n 2010 to create one, strong, united statewide organization.

The Mental Health Association in Delaware (MHA) is a statewide, nonprofit organization, which provides services throughout Delaware focused on education, support and advocacy for mental health issues.

The National Alliance for the Mentally Ill in Delaware is a statewide organization of families, mental health consumers, friends, and professionals dedicated to improving the quality of life for those affected by life-changing brain diseases such as schizophrenia, bipolar disorder, and major depression.

The National Multiple Sclerosis Society is dedicated to ending the devastating effects of multiple sclerosis through the delivery of programs and services to people with MS and their families and support of research into the cause and cure of MS.

New Directions Delaware, Inc. is a support group for people with depression and manic depression and for their families and friends.

The Parent Information Center of Delaware trains and informs parents and professionals, helps families obtain appropriate education and services for their children with disabilities, works to improve educational results for all children, resolves problems between families and schools or other agencies, and connects children with disabilities to community resources that address their needs.

People First of Delaware is a self-advocacy group which meets each month to learn about issues affecting persons with disabilities and to work on those issues. Trips and other activities are scheduled throughout the year which help members grow socially and emotionally, learn to advocate for themselves, and to have fun.

Practice Without Pressure offers training and treatment to ensure that all people, especially those with disabilities, receive quality medical, dental and personal care with dignity and respect.


Respite Care Referral Services (also known as RespiteOnine) is a free community service that enables families to do an online search of respite care providers in Delaware. Visit this website and follow the simple directions to get lists of respite care providers in your community, along with detailed information about the services they offer.

Special Olympics Delaware provides year-round sports training and athletic competition in a variety of Olympic-type sports for people eight years of age and older with mental retardation.

The State Council For Persons with Disabilities (SCPD) mission is to unite disability advocates and State agency policy makers to ensure that individuals with disabilities are empowered to become fully integrated within the community.

Variety – The Children’s Charity: Delaware Division is a non-profit volunteer-driven organization committed to providing programs and services to help improve the quality of life for children with disabilities in Delaware. We serve children between birth and 18 years of age with temporary and/or permanent disabilities resulting from injury, illness, or congenital conditions. For information on Delaware’s programs, please call (302) 993-0896.

Organizations without websites

The Deaf Moms Club recognizes the growing need of Deaf mothers and mothers who have a deaf/hard-of-hearing child for support systems. If you are interested, please e-mail Kathy O’Donnell at kodel9@comcast.net. Or call through voice relay and 1-800-232-5470 and dial number 838-5143.

State Agencies

Delaware Department of Education Projects, Programs, Directory, Press Releases, Statistics and links to other educational websites.

The mission of the Division of Developmental Disabilities Services is to provide services and supports to individuals with mental retardation/developmental disabilities and their families which enable them to make informed choices that lead to an improved quality of life and meaningful participation in their communities.

The Division of Services for Aging and Adults with Physical Disabilities (DSAAPD) recognizes the need among service providers for ongoing, updated information about training, funding, networking, and other issues related to professional and organizational development.

The Division of Social Services is directly responsible for administering these programs: Medicaid, Delaware’s Temporary Assistance to Needy Families (TANF) Program, Food Stamps, Subsidized Child Care, General Assistance, Refugee Cash Assistance, the Delaware Healthy Children Program, the Chronic Renal Disease Program and the Delaware Prescription Assistance Program.

The Division of Substance Abuse and Mental Health’s (DSAMH) mission is to improve the quality of life for adults having mental illness, alcoholism, drug addiction, or gambling addiction by promoting their health and well-being, fostering their self-sufficiency and protecting those who are at risk.

The Division for the Visually Impaired works in partnerships with Delawareans who are blind and visually impaired.

The Division of Vocational Rehabilitation
is the state’s public program that helps people with physical and mental disabilities obtain or retain employment.


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National Disability Links

The Association on Higher Education And Disability (AHEAD) is an international, multicultural organization of professionals committed to full participation in higher education for persons with disabilities by promoting excellence through education, communication and training.

The Association of University Centers on Disabilities (formerly the American Association of University Affiliated Programs for Persons with Developmental Disabilities) promotes and supports the national network of university centers on disabilities, (which includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs and Developmental Disabilities Research Centers (DDRC).

The Disabilities Studies and Services Center (DSSC) is a department of the Academy for Educational Development (AED). The Academy for Educational Development (AED) is an independent, nonprofit service organization committed to addressing human development needs in the United States and throughout the world.

The National Center on Educational Outcomes provides national leadership in the participation of students with disabilities in national and state assessments, standards-setting efforts, and graduation requirements.

The National Center to Improve Practice (NCIP) promotes the effective use of technology to enhance educational outcomes for students with sensory, cognitive, physical and social/emotional disabilities.

The National Head Start Disabilities Services Training Center developed a series of five training guides to strengthen the capacity of early childhood programs to reach and serve children with disabilities and their families.

Employment & Training

ETA DisAbility Online provides leadership in the development of national policy related to programs and services under the Workforce Investment Act of 1998 that impact individuals with disabilities.

The National Business & Disability Council is the leading resource for employers seeking to integrate people with disabilities into the workplace and companies seeking to reach them in the consumer marketplace.

The National Rehabilitation Information Center (NARIC) collects and disseminates the results of federally funded research projects, includes commercially published books, journal articles, and audiovisuals, and averages around 200 new documents per month.

Family Supports

The Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.

The National Information Center for Children and Youth with Disabilities (NICHCY) is the national information center that provides information on disabilities and disability-related issues with a special focus is children and youth (birth to age 22).

General Information - Disability Awareness

American Association on Intellectual and Developmental Disabilities (AAIDD) formerly the American Association on Mental Retardation (AAMR) promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual disabilities.

Cornucopia Of Disability Information (CODI) serves as a community resource for consumers and professionals by providing disability information in an Internet Directory of Disability Information and a repository of electronic disability documents (dating back to the early 1990s).

DisabilityResources.org disseminates information about books, pamphlets, magazines, newsletters, videos, databases, government agencies, nonprofit organizations, telephone hotlines and on-line services that provide free, inexpensive or hard-to-find information to help people with disabilities live independently.

Promote Awareness offers a wide variety of services and products designed to inform and educate businesses, families, educators, members of the medical profession, and the general public about the abilities of people with disabilities.

The American Psychological Association (APA) is a scientific and professional organization maintains a website with news and information about, articles, books, references and resources relating to mental and psychological health.

Health

American Association on Health and Disability's (AAHD) mission is to support health promotion and wellness initiatives for people with disabilities at the federal, state and local level, reduce the incidence of secondary conditions in people with disabilities, as well as reduce health disparities between people with disabilities and the general population.

MEDLINEplus: Developmental Disabilities offers news, statistics, articles and research information relating to developmental disabilities from the world’s largest medical library, the National Library of Medicine and the National Institutes for Health.

MEDLINEplus: Disabilities offers links to news, statistics, articles, and research information.

The National Women’s Health Information Center is a comprehesnive source of information for women about issues related to their health.

Health and Human Services Office on Disability oversees the implementation and coordination of disability programs, policies and special initiatives pertaining to the over 54 million persons with disabilities in the United States.

The Surgeon General’s Call to Action to Improve the Health and Wellness of Persons with Disabilities is a resource that helps identify barriers to overcome and suggests direction to improve the health and wellness of persons with disabilities.

Policy & Legislation

The Administration on Developmental Disabilities ensures that individuals with developmental disabilities and their families participate in the design of and have access to culturally competent services, supports, and other assistance and opportunities that promotes independence, productivity, and integration and inclusion into the community.

The National Association of Councils on Developmental Disabilities (NACDD) is a member-driven organization that is committed to representing the diverse interests of Developmental Disabilities Councils and the people with disabilities that Councils were created to serve.

The Disability Rights Movement Virtual Exhibition looks at the efforts of people with disabilities, and their families and friends, to secure the civil rights guaranteed to all Americans.

The National Association of State Directors of Developmental Disabilities Services (NASDDDS) is a nonprofit organization, established in 1964, to improve and expand public services to people with mental retardation and other developmental disabilities.

The National Council on Disability (NCD) is an independent federal agency making recommendations to the President and Congress on issues affecting 54 million Americans with disabilities.

The Americans with Disabilities Act homepage offers resources, publications and agencies affiliated with ADA.

Research

The Alliance for Full Participation is composed of 11 national disability organizations whose objective is to work together as partners to achieve a collective vision-- a world where people with developmental disabilities and their families realize the promise of integration, productivity, independence, and quality of life choices.

The Association of University Centers on Disabilities offers state-by-state program descriptions and personnel information.

The Disability Statistics Center produces and disseminates statistical information on disability and the status of people with disabilities, establishes and monitors indicators of how conditions are changing over time to meet their health, housing, economic and social needs.

The National Center for the Dissemination of Disability Research (NCDDR) research activities are designed to collect information that will assist in identifying the needs and most likely strategies that will assist in matching dissemination practices with intended user groups.

The National Institute on Disability and Rehabilitation Research (NIDRR) provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities.

Self-Advocacy

Disability.gov is a comprehensive Federal website of disability-related government resources.

Advocating Change Together distributes tools and materials that help individuals and groups promote self-advocacy in their lives and work.

The Arc of the United States works to include all children and adults with cognitive, intellectual, and developmental disabilities in every community.

National Accessible Apartment Clearinghouse offers information housing in over 43 States and over 155 major metropolitan areas nation-wide (Delaware is not included at this time)..

The National Center on Physical Activity and Disability (NCPAD) site provides information and resources that can enable people with disabilities to become as physically active as they choose to be.

Self Advocates Becoming Empowered ensures that people with disabilities are treated as equals and that they are given the same decisions, choices, rights, responsibilities, and chances to speak up to empower themselves.

We Connect Now serves college students with disabilities in an effort to connect and integrate them more as a virtual community with a voice on important issues.

Support and Services

Captioned Media Program (CMP) provides all persons who are deaf or hard of hearing equal access to communication and learning through the use of captioned educational media and supportive collateral materials.

The National Arts and Disability Center (NADC) is dedicated to promoting the full inclusion of children and adults with disabilities into the visual, performing, media, and literary-arts communities.

National Center on Birth Defects and Developmental Disabilities promotes the health of babies, children, and adults, and enhances the potential for full, productive living through identifying the causes of birth defects and developmental disabilities.

The National Council on Independent Living advances the independent living philosophy and advocates for the human rights of, and services for, people with disabilities to further their full integration and participation in society.

National Institute of Art & Disabilities (NIAD) provides an art program for people with developmental disabilities that promote creative expression, independence, dignity and community integration.

The National Organization on Disability (NOD) expands the participation and contribution of America’s 54 million men, women and children with disabilities in all aspects of life.

National Service Inclusion Project for information, training, technical assistance, best practices, demonstration projects, and more about people with disabilities in national and community service:

The World Association of Persons with Disabilities (WAPD) advances the interests of persons with disabilities at national, state, local and home levels.

Special Olympics is dedicated to empowering individuals with mental retardation to become physically fit, productive and respected members of society through sports training and competition.

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