Autism Speaks is "...a new initiative devoted to educating the public about autism,
facilitating and funding research, motivating private and governmental resources,
and, ultimately, helping to find a cure for autism..." Founded by Bob and Suzanne Wright,
web site leads to many resources and links to articles from the recent NBC autism coverage.
A DVD of all the NBC autism programming is available for the cost of postage. Visit their
web site at www.autismspeaks.org for more information and how to order.
"The Autism Source. A Global Information Source for More Advanced Individuals with
Autism, Asperger Syndrome, PDD-NOS, Hyperlexia and NLD (Nonverbal Learning Disorders."
This national nonprofit group has been providing support to families and individuals with Asperger Syndrome and other High Functioning
Autism spectrum sisorders for many years.
They sponsor a very large annual conference and publish a quarterly
newsletter. In addition, they are now actively involved in research and national advocacy.
Please visit their recently updated web site at
www.maapservices.org or contact them at:
This group, based in the Boston area, provides comprehensive and up-to-date
information and support on Asperger Syndrome to the Northeast. Although technically
a regional organization, they have become national leaders in areas such as
support, education and advocacy. They sponsor many conferences and workshops.
Please visit their web site at www.aane.org
This is an excellent site and resource.
You can download their information packages,
read through book & tape lists, request membership information
(local & national), etc.
ANI is a self-advocacy group run by
and for autistic persons. This group welcomes families however the main
focus of this group is on the issues and needs of
individuals on the Autistic Spectrum. They also sponsor an annual "Autreat", for information please
visit their web site at www.ani.ac
This is the webpage for a new nonprofit organization and foundation created by Carol Gray
who is the author of Social Stories
This organization provides support and information and is "dedicated
to individuals with autism spectrum disorders and those who work alongside of them to provide mutual
understanding." They also sponsor conferences and workshops.
LDA is currently
involved in a long term
study of Asperger's Syndrome with the
Child Study Center at Yale University.
Contact them to request copies of the AS booklets
(also available for downloading from the
Papers and Articles area of OASIS. Scroll to "Asperger Syndrome: Some Guidelines for Assessment, Diagnosis
and Intervention" and
"Asperger Syndrome Treatment and Intervention: Some Guidelines for Parents".
In addition, they offer for sale disability related books. Contact them via mail at:
4156 Library Avenue, Pittsburg, PA l5234, or by phone, 412-341-1515
MAAP Services, P.O. Box 524, Crown Point, Indiana, 46307. 1-219-662-1311.
GRASP: The Global and
Regional Asperger Syndrome Partnership
GRASP is an organization that is serving individuals on the
autism spectrum, and run BY those individuals. The present focus of the
organization is support and education, but they also have an interest in advocacy
and monitoring of social services and professionals in the field. The basic
philosophy of the GRASP organization is to maximize the positive aspects of AS,
and to minimize the negative aspects. They have local support groups for adults in
NYC, Long Island, and Southern New England. A new group is forming to serve the
Philadelphia, Southern New Jersy and Delaware area. Please visit their web site at:
www.grasp.org
This group has many online articles and resource.
OASIS Delphi MESSAGE BOARDS AND CHATS
O.A.S.I.S. Boards and Chat Rooms
These are moderated message boards and chat rooms linked to the OASIS site. There are three forums
at this time. In order to join these forums you'll need to REGISTER WITH DELPHI.COM
following the links to any of the forums will get you to delphi. The forums are moderated so
once you're registered you'll need to write for the "group registration code".
This forum is a public forum on delphi. However, it is set up for use by adults with AS and related diagnosis. Parents and others are welcome to read the posts, however, actual posting and participation is restricted to those on the spectrum only.
A chat room for anyone that has a connection with Autism/Aspergers or a related disorder. They can be reached either by clicking "chat now" on www.autistichat.net or on IRC by going to irc.starchat.net and joining #autistichat.
This forum was created so those on the autism spectrum can get together and talk about their lives.The forum owner writes:
Some other forums have Aspies and NT's (otherwise known as neuro-typical or normies) together. I have found that this prevents me, and other Aspies I think, from talking about certain aspects of our lives for concerns on being misunderstood. The forum semi-private. Most of the folders will be restricted access so we can feel free to discuss whatever we wish. I will have one folder remain public so others can find this forum in the search feature.
This group is set up in order to help other Adult Aspies and their carers to come to terms with the condition. Free speech is encouraged, although no flaming with be tolerated and posts be moderated for the first 2 weeks. NTs are welcome in this group, but the theme is support for Aspies.
Sponsored by ASPIRES (Asperger Syndrome Partners & Individuals Resources, Encouragement and Support), an on-line resource for spouses and family members of adults diagnosed or suspected to be on the autistic spectrum. The approach of this group is directed towards solving problems in relationships. The listserv is a closed, subscription list hosted by FEAT. The list is owned and administered by Linda Newland. Email her at OPU@PEAK.org
Individuals wishing to join must contact Linda with introductory
information and use their own names and true addresses. Applicants must
agree to ASPIRES membership terms and conditions. Maintaining all
members' sense of safety and confidentiality is the prime administrator's
criterion for continued individual membership.
Click Here
to sign up for the listserv.
This group is mostly for couples at any level of commitment. The idea is to have list members provide support and advice on navigating the dating jungle, deal with long-term relationship issues surrounding communication and other difficult areas, etc. Married persons may also join if they wish. To access this group go to: http://groups.yahoo.com/group/joint-AS-HFA-couples/
This group is for much the same purposes as the AS/HFA Couples group above, except it's exclusively for married couples. This way if any marrieds feel more comfortable being in a more exclusive group, they have this option. To access this group go to: http://groups.yahoo.com/group/joint-AS-HFA-marriages/
Children with AS do grow up. Some of them go on to have children. What then?
This is an online forum open to people over 18, most of whom identify as NT, and who had one or both parents/ carers on the Autistic Spectrum. Over the past 2 years we have built up a great deal of insight into the effects of AS parents on their children . We offer support, information, and healing. Our next step is to empower our members to advocate for children raised in AS homes, as this is a major issue that the AS community needs to be aware of. If you would like to join ASpar or just find out more, the ASpar homepage is at http://www.aspar.klattu.com.au
Gifted with LD Homeschoolers Forum
This forum for asperger/autistic
people, their relatives and others involved with them who practice a
traditional christian life-style.
Go to
http://forums.delphiforums.com/aspautchrist/start
This forums is for asperger/autistic adults who are students in college,
university and other places of education. This is a a place to discuss how
being on the autistic spectrum effects your learning and being among other
students and staff.
Go to
http://forums.delphiforums.com/aspautstudents/start
This is a forum for asperger/autistic people to express their beleifs and
philosophy of life, the world and it's society and about the spirituality
of being the way they are.
Go to http://forums.delphiforums.com/aspautphil/start
No need to include your name or any other information in the e-mail--, you'll be writing to a computer and your e-mail address will be recognized. Make sure your e-mail address is accurate.
This list is specifically for professionals who work with people with AS to share knowledge on the topic of Programs and Interventions. For information about this group please contact David Egege by email at egege@picknowl.com.au
This group if for parents of children on the end of any spectrum where they are considered
shadows or ghosts of that disorder. Or have a milder variation. Not limited to AS, parents of
children with shadows of ADD, CAPD, TS, ODD and others are welcome.
To Subscribe:
Go to www.onelist.com Register with onelist
and type in the keyword box ShadowSyndromeKids, set your options and you'll be in.
If you have questions about this you can contact the listowner at
pamrose@mindspring.com
These are a series of support lists/forums for individuals with Autism, AS, and Related Disorders. Contact Martijn Dekker for further information. Or, Click Here to go to the website
Autinet is an open discussion list for Autism and Asperger Syndrome. To subscribe send an e-mail to AUTINET.wise@iol.ie telling something of your interest in Autism and Asperger Syndrome and asking to be subscribed. List owner is Peter Wise. To send him an e-mail Click Here Or, to visit the webpage Click Here
"Breaking Down the Wall" This is a link to a webpage and support group for families of children with these two disabilities, and those professionals who work with them.
This group is for discussion among people with autism and other PDD-spectrum disorders, their parents and relatives, educators, medical practitioners, and other interested people. Talk about these conditions, about treatment options, and about challenges and triumphs, what has helped and what hasn't. Or just chat about anything at all with people who understand.
If you use a news agent client software, the name of the newsgroup is: bit.listserv.autism To subscribe to the autism newsgroup using an e-mail, send an e-mail message to: LISTSERV@MAELSTROM.STJOHNS.EDU The first line of your message should read subscribe autism Firstname Lastname Use your first and last name and also make sure you type LISTSERV and not LISTSERVE.
To subscribe to the Hyperlexia listserv using an e-mail, send an e-mail message to: LISTSERV@MAELSTROM.STJOHNS.EDU and the first line of your message should read subscribe Hyperlex Firstname Lastname-Use your first and last name and also make sure you type LISTSERV and not LISTSERVE.
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