Autism Diet and Nutrition StudyOnline survey - looking for participants from throughout the United States
A collaboration of programs and agencies, including the Delaware Division for Developmental Disabilities
and the Delaware Department of Education, are interested in the nutritional and dietary needs and concerns
of children with autism. During the past decade, a number of professionals, families, and advocates
have raised numerous questions about the impact of nutrition and diet on the development of children
with autism. Your assistance with determining these needs and concerns is critical.
Click Here to complete the survey
New York University: Steinhardt School of EducationAsperger Syndrome and Parenting - Online Survey
Seeking Parents of children ages 5 to 16 yrs. old who have been identified as having Asperger Syndrome.
Parents are invited to take part in a research study to learn more about parents of children with Asperger Syndrome and their parenting experiences. This study will be conducted by Jeanne Angus, Applied Psychology, Steinhardt School at New York University, as part of her doctoral dissertation. Her faculty sponsor is Samuel Juni, Ph.D, Applied Psychology, Steinhardt School at New York University.
To participate in this online survey please go to: www.jeanneangus.info
NOTE: A password is needed to gain access to the
website. The password is: asperger
Asperger Syndrome Siblings: A Survey of Parents' Perceptions of their Understanding of the Illness, Sibling Relationships and Need for Support Services" - Online Survey
Graduate Occupational Therapy students under the supervision of Emily Raphael, M.S., M.A., OTR/L, are conducting research into the needs of siblings of children diagnosed with Asperger syndrome (AS). This online survey asks questions relating to siblings' adjustment and support, and their relationship with their brother or sister who has been diagnosed with AS. We believe that an appreciation of siblings' experiences will lead to more effective and greater support for these children and their families.
We are interested in hearing from primary care givers who have at least one child with AS, who has at least one sibling, both over the age of 6. The survey should take approximately 20 minutes. Responses will be completely confidential and anonymous, and no personal identifying information is required to participate.
To participate in the survey please go to: http://www.columbia.edu/~ch2277/
If you have any questions about this research please do not hesitate to contact us at eir12@columbia.edu or call us at (212) 342-2743.
Attention: Parents of Children with Diagnosed with Autism, Asperger’s
Disorder, or Pervasive Developmental Disorder (PDD)
Dawn Middleton, M.A., Doctoral Candidate and Liora Pedhazur-Schmelkin,
Ph.D., Vice Provost for Academic Affairs, are currently examining parental
experience and opinions of educational placements for children with autism
spectrum disorders. We are asking that parents or guardians of children
diagnosed with an autism spectrum disorder (Autism, Asperger's Disorder, or
Pervasive Developmental Disorder (PDD)) participate in this study by
completing an online questionnaire.
If you choose to participate, you will be asked to complete the following questionnaire, which will take approximately 20 minutes. No further participation is necessary. You will not be asked to supply any personal identifying information. All results will be reported in terms of group responses and no individual responses will be reported You may access the questionnaire by clicking on the following link: www.autismspectrumsurvey.org
If you have any questions about this research please do not hesitate to contact Dawn Middleton at dawnmiddleton@yahoo.com
UC Davis M.I.N.D. Institute, Sacramento California
Parents: We need your help!
The UC Davis M.I.N.D. Institute's clinical
research program is seeking children of all ages (birth to adulthood) to
participate in our studies. The research team is seeking participants with
neurodevelopmental disorders, developmental delays, or typical development.
In addition to helping our understanding of neurodevelopmental disorders,
participants benefit from state-of-the-art assessment techniques and
feedback from clinical researchers. Some studies also offer financial
compensation.
For more information , please contact Meridith Brandt at (916) 703-0320 or go to www.ucdmc.ucdavis.edu/mindinstitute/html/research_program/research_studies.html
We are looking for adults or children who are diagnosed with AS to take part in a new genes project, along with their brothers and sisters.
This new worldwide study involves collecting a DNA sample and a questionnaire from individuals with Asperger Syndrome and their biological brothers and sisters. Providing a DNA sample is quick, easy and a completely painless process. This research may enable us to identify specific genes involved in Asperger Syndrome, furthering our understanding of the condition and possibly leading to earlier diagnosis.
For further information please see:
www.autismresearchcentre.com/volunteers/sib_pair.asp
Or email Sally Wheelwright: sjw18@cam.ac.uk
The goals of this research are to better define the boundaries and clarify the distinctions between HFA and AS, as well as to indentify familial patterns of inheritance in these two disorders. This study is a collaborative effort and includes our site at McLean Hospital as well as sites as the Yale Child Study Center, The University of Chicago, and the University of Michigan. This investigation is supported through the NICHD and was just awarded funds for another 5 years of study.
We are currently enrolling families with at least one child between the ages of 6 and 21 with a diagnosis of High Functioning Autism or Asperger Syndrome (IQ >70), and no other significant disorders.
For more information on how you can participate go to:
www.mgh.harvard.edu/allpsych/psychneurogen/psychneuro_research_highfunction.htm
Research Project Overview:
The research team is led by Kathy Deornellas, Ph.D., and Melinda Lang, Ph.D., of Texas Woman's University.
The purpose of this research is to add to the body of knowledge concerning the best practices for
psychological assessment of children and adolescents who have been diagnosed with pervasive developmental disorders (PDDs),
specifically High Functioning Autism and Asperger's Syndrome. The research will also examine the impact of having a
child with PDD on their parents' satisfaction with the parenting role and the marital relationship. The team hopes
to find specific patterns that may assist in earlier identification of children with these disorders.
Participation:
The research team is looking for children and their parents in the Dallas/Ft. Worth area
who are interested in contributing to the current body of knowledge of pervasive developmental disorders.
Children who participate should have the following qualifications:
The assessment will take place at a location most convenient for the family. Parents will receive a verbal interpretation of the child's assessment results at the conclusion of the study.
For more information contact:
Kathy DeOrnellas, Ph.D.
Toll Free: (888) 948-9984 X2315
In Denton: (940) 898-2315
Team Email: TWUresearchteam@yahoo.com
Website:
http://piostore.twu.edu/PIONEER/carlwr/share/www/index.htm
Ernst VanBergeijk, Ph.D. and his colleagues at Fordham University are conducting a series of focus groups with parents of children with Asperger's Syndrome (AS). Parental coping and family organization have been shown to have strong links to positive mental health outcomes of children with disabilities. The purpose of this qualitative study is to explore the perceptions, coping strategies, and family functioning of parents of children with AS, and how existing support systems impact their family functioning. Participants would be asked to attend one focus group that would last approximately 1.5-2.0 hours. They would also be asked to complete a short anonymous questionnaire concerning family demographics. If you are a parent of a child with AS who is under 25 years of age and are interested in participating in the study, please contact Ernst VanBergeijk at 212-636-7784 or e-mail to: vanbergeijk@fordham.edu Childcare and Metrocards are available to interested families participating in the study. As a token of appreciation for their time, participating parents will receive a $25 gift certificate to the Autism Asperger Publishing Company Website.
Dr. Jeanne Townsend at the University of California San Diego, Dr. Axel
Mueller at San Diego State University, and their colleagues, are working
together to learn more about brain functioning in autism. These studies are
funded by the National Institutes of Health.
We are looking for individuals with autism or Asperger's Syndrome who live
in the San Diego area. We are seeking children, adolescents, and young
adults (age 10 and up) for studies that will involve performing behavioral
tasks while having your EEG recorded or during a functional magnetic
resonance imaging (FMRI) session.
Qualified participants will receive a diagnostic and psychological
evaluation from a clinical neuropsychologist. Results from clinical testing
will be made available. There is no cost to participate. Participants will
be paid for their time. For more information, please contact:
Natacha Akshoomoff, Ph.D.
Assistant Professor
Dept. of Psychiatry
University of California, San Diego
(858) 622-1805
email to: natacha@ucsd.edu
You are invited to consider participation in ongoing research projects studying how people with autism think and the genetic link to autism. Studies include: How People with Autism Think and How the Brain Works, Finding The Genes for Autism, Family Study, and Infant Study.
For more information on specific studies and how you can participate, please Click Here
This study will examine the preferences of adults (age 20 and older) who have Asperger syndrome. Individuals who participate in the study will be asked about their likes and dislikes, and preferences in their daily lives including home, work, and free time. In addition they will be asked for information about their life history and sensory needs. It is our hope that we will have many participants since this study will be the first of its kind. This study is sponsored by researchers at the University of Kansas.
All information will be gathered by mail using surveys and questionnaires. Participants will be sent questionnaires through the mail with return postage paid envelopes provided for their convenience. All information will be confidential. Individuals will receive the results of their surveys and questionnaires. If you are 20 years old or older and have Asperger syndrome, please email the researchers if you are interested in participating in this study. The contact email address for this survey is: adultastudy@mail.ku.edu
Brenda Smith Myles, Ph.D. and her colleagues at the University of Kansas are undertaking two large-scale studies to better understand children and youth with Asperger Syndrome in order to plan effective interventions.
The first study will involve completion of surveys and interviews via phone by parents and children/adolescents. Brenda and her colleagues will assist in these tasks. In the second study, children/adolescents with Asperger Syndrome will be provided with a software program that teaches emotions and will be asked to use it for 2 hours per week for 10 weeks.
Parents who have children with Asperger Syndrome (ages 8 to 18) who are interested in learning more about the study are asked to contact Brenda at asdresearch@ku.edu .
Exciting research projects for children and adolescents with Autism, Asperger's and PDD. In studying medication treatments, the focus is on treating specific core symptoms, including compulsive behaviors, social deficits, and language deficits. The medications aim to reduce anxiety, repetitive behaviors, irritability, aggression, impulsivity, and self-injurious behavior. The research studies offer comprehensive diagnostic testing, neuropsychological assessment, and frequent visits with child psychiatrists to closely monitor subjects and assess change over 8 to 12 weeks depending on the study at no cost to participants.
If you would like more information, please visit:
http://www.mssm.edu/psychiatry/autism/seaver.shtml
or contact Karen Zagursky, (212)241-7098.
GCO# 99-364(IRB Approved 6/25/03 to 5/31/04)
Research Study: “Diffusion Tensor Imaging in Autism and Asperger’s Disorder”
(GCO# 00-0951, IRB approved through 7/31/04)
We are looking for individuals with autism and/or Asperger’s Disorder (18- 40 years old) in the New York City area to participate in a neuroimaging research study. The purpose of this study is to learn more about which areas of the brain are involved in attention and how they connect with each other. By learning more about the mechanisms of attention, the investigators may help the discovery of new treatments for autism, Asperger’s Disorder, and other neurological and psychiatric illnesses.
Your participation will involve three visits to Mount Sinai School of Medicine. The first visit will involve a diagnostic interview to clinically verify your diagnosis. In addition, you will receive a Positron Emission Tomography (PET) scan and a Magnetic Resonance Imaging (MRI) scan on separate days.
If you receive both PET and MRI scans you will receive $200 in reimbursement for your time and expenses. You will receive $100 if you only have one of the scans.
If you are interested in participating in our research study or if you have any questions, please contact Liz LiCalzi at 212-241-6314 or email elizabeth.licalzi@mssm.edu
For more information about the Neuroscience PET Laboratory visit our website: www.mssm.edu/psychiatry/PETlab.shtml
We are looking for young men of normal intelligence 10-18 years of age with social understanding difficulties (as seen in Non-Verbal Learning Disorder, Asperger's Syndrome, High Functioning Autism and Pervasive Development Disorder-Not Otherwise Specified) in the San Francisco and Bay Area and their families to participate in a genetic study.
This study is of Social Understanding Difficulties so we need young men with and without the one of the above diagnosis. We are extremely interested in abilities or strengths that we believe might be associated with social understanding difficulties.
The young men and their families would be asked to complete a social screening questionnaire, undertake some related tasks and donate a small amount of blood for genetic study. This can be done at your home or Stanford University - in the evenings or weekends if more convenient.
There will also be a smaller brain imaging part to the study and some young men may be asked if they would like to have their brains scanned!
Contact: Judith Piggot, an Adolescent Psychiatrist doing research at Stanford University, by Email at: jpiggot@stanford.edu or phone: (650) 498 4660.
Stand Up and Be Counted:
Help Yale University Determine How Many Are Dx with AS
Click Here For Information and Single Question Survey.
Seeking Video Tapes of Infants (up to 15 months) of individuals now diagnosed with AS
In our earlier work, we have shown that movement patterns as early as 6 months of age are reliable markers for diagnosing kids at risk of autism. We believe people with AS display the same movement disturbances and therefore can be diagnosed much earlier than is typical by current methods. WE NEED VOLUNTEERS! If you have been diagnosed with AS, or you are a parent with such a child and have home videos taken in infancy (up to 15 months) and are willing to share these videos, please contact us. Videos will copied and the originals will be returned.
Contact:
Professor Philip Teitelbaum
Psychology Department
P.O. Box 112250
University of Florida
Gainesville, FL 32611
e-mail: teitelb@ufl.edu
Adolescents and Adults with Autism: A Study of Family Caregiving
This project, funded by National Institute of Health, is a "... study of 400 families of people with autism who live
in Wisconsin and Massachusetts. Our goals are to describe the quality of life of these families,
to assess the extent to which their service needs are adequately met,
and to examine the plans they have made and put into place for the future"
For more information visit their web site at: http://www.waisman.wisc.edu/family/index.htmlx
Volunteers Needed for Research Into Asperger Syndrome
We are a team of psychologists at Cambridge University carrying out research studies into Asperger Syndrome (AS). These
studies are investigating cognitive aspects, behaviour and personality. Many of these studies simply involve filling in
questionnaires and returning them (in prepaid envelopes). Others involve being assessed by one of our team. We would like to
hear from parents of childen and teens with AS or HFA and adults with AS or high functioning autism who are interested to receive further details about these different studies
(with no committment on your part). If you are interested, please contact Dr. Simon Baron-Cohen by e-mail
sb205@cus.cam.ac.uk, visit their web site
at Autism Research Centre, or
by mail:
Professor Simon Baron-Cohen
Autism Research Centre
Section of Developmental Psychiatry
University of Cambridge
Douglas House
18b Trumpington Road
Cambridge, UK
CB2 2AH
This webpage was created by the Autism/PDD research team at Chedoke McMaster University, Hamilton, Ontario, Canada. For the past 15 years, Dr. Peter Szatmari and his team have been conducting a variety of research studies in the area of Autism, Asperger Syndrome and PDD. Their page contains information on their research studies, research newsletters, educational resources and more.
They are currently seeking participants from families who have two or more children the autism/PDD
National Research Organizations
Home to O.A.S.I.S.