
AARP
Grief and Loss
Provides
extensive information, resources and support including chat
rooms, consumer tips, online journaling and information on
support groups. Additional resources available to all were
added after 9/11/02.
http://www.griefandloss.org/
Alive
Alone
Alive Alone is an organization for the educational and charitable
purposes to benefit bereaved parents, whose only child or
all children are deceased, by providing a self-help network
and publications to promote communication and healing, to
assist in resolving their grief, and a means to reinvest their
lives for a positive future.
http://www.alivealone.org/
American Academy
of Pediatrics
http://www.aap.org/
American
Association of Suicidology
http://www.suicidology.org/
American Cancer
Society, Inc.
Find everything
you need to cope with cancer and its effects. How to
stay healthy after treatment and share your experiences. Get facts on cancer, risk factors and prevention.
1599 Clifton Rd.,
N.E., Atlanta, GA 30329; tel. 800-ACS-2345.
http://www.cancer.org
Americans for
Better Care of the Dying (ABCD)
Every dying person
needs to be able to count on excellent care at the end of
life. ABCD aims to improve end-of-life care. Site provides
news, public policy, resources, reading room and online conferences.
http://www.abcd-caring.org/
Association
for Death Education and Counseling: A multi-disciplinary
professional organization dedicated to promoting excellence
in death education, bereavement counseling, and care
of the dying.
http://www.adec.org
Association
of American Sickle Cell Disease
http://www.sicklecelldisease.org/
Association
of Pet Loss and Bereavement
http://www.aplb.org/
Before I Die,
PBS
Before I Die: Medical
Care and Personal Choices premiered on April 22, 1997. The
program explores the medical, ethical, and social issues surrounding end-of-life
care in America today. This Web companion piece features original
reporting (real life stories, sidebars) by health writer Janet
Firshein, 1995 Kaiser Media Fellow.
http://www.thirteen.org/bid/
Bereaved Parents
of the USA
This
is a nationwide organization designed to aid and support bereaved
parents and their families who are struggling to survive their
grief after the death of a child. Any bereaved parent, sibling,
or grandparent is eligible to become a member of the BP/USA.
http://www.bereavedparentsusa.org/
Cancer
Care Connection
A non-profit organization that combines compassionate, personalized
support with the latest advances in technology. A free public
service to help consumers find local services and internet
resources. Located at Three Innovation Way, Suite 210 in Newark,
DE 19711. Phone:302-266-8050 or 866-266-7008.
http://www.cancercareconnection.org/
The Candlelighters
Childhood Cancer Foundation® (CCCF)
CCCF is a national nonprofit membership organization
whose mission is to educate, support, serve, and advocate for
families of children with cancer, survivors of childhood cancer,
and the professionals who care for them. Makes available newsletters,
bibliographies, and other materials.
http://www.candlelighters.org/
The Center
for Grieving Children and Teenagers
The Children's Room
offers hope and quality of life to bereaved children and those
who are part of their lives. In this safe and caring environment,
children, teenagers, and their families can receive the support
they need while grieving the death of a loved one.
http://www.childrensroom.org/
The Centers
for Disease Control and Prevention (CDC) is recognized
as the lead federal agency for protecting the health and safety
of people - at home and abroad, providing credible information
to enhance health decisions, and promoting health through
strong partnerships.
http://www.cdc.gov/
The Compassionate
Friends
The
mission of The Compassionate Friends is to assist families
toward the positive resolution of grief following the death
of a child of any age and to provide information to help others
be supportive. The Compassionate Friends is a national nonprofit,
self-help support organization that offers friendship and
understanding to bereaved parents, grandparents and siblings.
There is no religious affiliation and there are no membership
dues or fees.
http://www.compassionatefriends.org/
Corporate Angels
Network
Corporate Angels
Network provides free air transportation for cancer patients
traveling to and from recognized treatment centers in the
United States without regard to their financial resources.
http://www.corpangelnetwork.org/
Children's
Hospice International offers information on children's
hospice care. 1-800-24-CHILD
http://www.chionline.org/
Children's
International Project on Palliative/Hospice Services (ChIPPS)
National Hospice
and Palliative Care Organization
Offers information
on the program to enhance the science and practice of pediatric
hospice and palliative care.
http://www.nhpco.org/
City of Hope
Palliative Care Resource Center
The purpose of
the COHPPRC is to serve as a clearinghouse to disseminate
information and resources that will enable other individuals
and institutions to improve the quality of pain management.
http://prc.coh.org/
Compassion
Books maintains over 400 resources to help children and
adults through serious illness, death, loss, grief and bereavement.
Reviewed and selected by knowledgeable professionals.
http://www.compassionbooks.com/
Cremation
Association of North America
http://www.cremationassociation.org/
CureSearch
http://www.curesearch.org/
Delaware End-of-Life Coalition
The mission is to strengthen collaboration between the public and professional communities of Delaware regarding end-of-life issues and to serve as an umbrella organization to:
Delaware Hospice
When recovery is no longer possible, Delaware Hospice can
help. Focusing on care, not cure, Delaware Hospice ensures
that patients and their families receive the care, comfort,
and support they need at a time when it's needed most. Pain
and symptom management and emotional support are provided
in the familiar surroundings of home or a homelike setting
(nursing home). The Children's Program provides support to
help children and their families who are dealing with the
loss of a loved one. "New Hope" is Delaware Hospice's
program designed especially for grieving children (see Summer
Camps for more information).
http://www.delawarehospice.org/
The Dougy Center was the first center in the US to provide peer support groups
for grieving children. The Center shares what it has
learned from over 13,500 children, teens and families they've
served since 1982.
http://www.dougy.org/
The Elizabeth
Glaser Pediatric AIDS Foundation is the leading worldwide
nonprofit organization dedicated to identifying, funding and
conducting pediatric HIV/AIDS research, and now other serious
and life-threatening diseases affecting children.
http://www.pedaids.org/
The End of
Life: Exploring Death in America
Transcripts; Resources;
Bibliography; Readings; Tell Your Story; Feedback. This
program is a special series from National Public Radio's All
Things Considered.
http://www.npr.org/programs/death/
End of Life
Care for Children and Their Families: Ethical Dimensions
http://www.HELIX.com
End-of-Life
Nursing Education Consortium (ELNEC) Project
The
End-of-Life Nursing Education Consortium (ELNEC) project is
a comprehensive, national education program to improve end-of-life
care by nurses, and is funded by a major grant from The Robert
Wood Johnson Foundation. Primary project goals are to develop
a core of expert nursing educators and to coordinate national
nursing education efforts in end-of-life care.
http://www.aacn.nche.edu/elnec/
Federal
Trade Commission
http://www.ftc.gov/
Finding
Our Way: Living with Dying in America
Finding
Our Way: Living with Dying in America is a fifteen-week newspaper
series which ran September 10 through December 17, 2001. The
series was distributed throughout the country by Knight Ridder/Tribune
Information Services. The Finding Our Way national public
education initiative is focused on bringing practical information
to the American public regarding end of life and its surrounding
issues.
http://www.findingourway.net/
Funeral
and Memorial Societies of America (consumer rights organization)
http://www.funerals.org/
Funerals:
A Consumer's Guide
http://www.ftc.gov/bcp/conline/pubs/services/funeral.htm
Grief
and Loss Resource Center
It is the hope of this site to provide a place where the issues
of grief, grieving, transition, recovery and healing are addressed.
Resources for ministers, police, EMS personnel, doctors, nurses,
counselors, and other professionals are provided.
http://www.rockies.net/~spirit/grief/griefA1.html
GriefNet is
an Internet community of persons dealing with grief, death,
and major loss. They have 37 e-mail support groups and two
web sites. GriefNet has an integrated approach to on-line
grief support providing help to people working through loss
and grief issues of all kinds. Their companion site,
KIDSAID, provides a safe environment for kids and their parents
to find information and ask questions.
http://griefnet.org/
Griefs
Heart
Many have stories to tell of journeys in grief toward lasting
love for a family member, companion or friend. Surely these
are among the most precious stories we hold within us. Please
share a story on this web site about finding lasting love
through grieving. Tell what it has been like to: know and
love an irreplaceable someone who has died; reach through
the pain of separation; reclaim meaning not canceled by death;
and embrace and use legacies left to you.
http://www.griefsheart.com
Growth House is an award winning site with resources about life-threatening
illness and end of life care. Their primary mission is to
improve the quality of compassionate care for people who are
dying through public education and global professional
collaboration. Includes information on helping children
with grief and serious illness.
http://www.growthhouse.org/
Hospice Foundation
of America
Offers information
to professionals and families about caregiving, terminal illness,
loss and bereavement.
http://www.hospicefoundation.org/
Hospice & Palliative Care Federation
The Hospice Federation of Massachusetts provides this booklet
to answer your questions and help you navigate this new phase
of life. Hospice, they note, may well become one of your most
important resources, whether you are a patient, family member
or friend seeking to help someone dear to you. Site sponsored
by the Robert Wood Johnson Foundation.
http://www.hospicefed.org/
Hospice Net
addresses patients and families facing life threatening
illness. Resources for patients, caregivers and specific
information on children and teenagers experiencing grief.
http://hospicenet.org/
International
Association of Pet Cemeteries
http://www.iaopc.com/
Kennedy
Institute of Ethics
Resource for ethical issue related to death and dying. Has
links to the National Reference Center for Bioethics Literature
and the BIOETHICSLINE database containing over 9,000 citations
related to death and dying issues.
http://georgetown.edu/research/kie/site/index.html
KIDSAID is a safe place for kids to share and to help each other deal
with grief about any of their losses. It's a place to share
and deal with feelings, to show artwork and stories,
to talk about pets, to meet with one's peers. Owned and run
by griefnet.org.
http://kidsaid.com/
Leukemia Society
of America
http://www.leukemia.org/
Living
Wills
http://www.uslivingwillregistry.com/
Locks of Love
A charity that
provides hairpieces to financially disadvantaged
children under
the age of eighteen with medical hair loss.
http://www.locksoflove.org/
Love,
Josh
The
fifth documentary in HBO Familys Parent Handbook series,
Love, Josh documents a year in the life of a fifteen year
old whose father has died from liver cancer. Over the course
of a year, starting at his dads memorial service, Josh
reveals his feelings to the camera: pain, disbelief, anger,
emptiness, as he tries to rearrange the world without his
father. As the year passes, Josh comes to realize that memories
are his treasures for they're all he has to connect to his
father.
http://www.hbofamily.com/programs/parent_handbook/love_josh.html
Mothers Against
Drunk Driving (MADD) looks for effective solutions
to the drunk driving and underage drinking problems, while
supporting those who have already experienced the pain of
these senseless crimes.
http://www.madd.org/home/
Make a Wish
Foundation
Make
a Wish Foundation grants the wishes of children with life-threatening
illnesses to enrich the human experience with hope, strength,
and joy.
1-800-722-WISH
http://www.wish.org/
National
Cemetery Administration
Information on the Veteran's Administration National Cemeteries
and other burial benefits.
http://www.cem.va.gov./
National
Center for Death Education
The National Center for Death Education (NCDE) promotes, creates,
and disseminates understanding and research in thanatology,
the science of death studies. Their mission is to assist people
in caregiving professions to develop creative and useful skills
for coping and growing with dying, death, bereavement, and
loss. The resources of the National Center library are open
to students, researchers, and practitioners. The National
Center also academically supports the curriculum of The New
England Institute of Funeral Service Education at Mount Ida
College and individuals seeking continuing professional education
in related career fields.
http://www.mountida.edu/sp.cfm?pageid=
307
National
Funeral Directors Association (provides links to caregiving
websites)
http://www.nfda.org/resources/
National
Hospice and Palliative Care Organization
Provides a search
for hospice and palliative care, as well as statistics, resources
and information.
http://www.NHPCO.org/
National Children's
Cancer Society
http://www.nationalchildrenscancersociety.com
National Library
of Medicine and the National Institutes of Health offer
Medline Plus Health Information on death and dying. Includes news, research, laws and policies, children issues
and resources in Spanish.
http://www.nlm.nih.gov/medlineplus/deathanddying.html
Oregon
Hospice Association, Inc.
The Oregon Hospice Association is a 501(c)(3) public benefit
membership organization dedicated to ensuring that all Oregonians
have access to high quality hospice and comfort care.
http://www.oregonhospice.org/
Parents of
Murdered Children
POMC®
provides the ongoing emotional support needed to help parents
and other survivors facilitate the reconstruction of a "new
life" and to promote a healthy resolution. Not only does
POMC help survivors deal with their acute grief, but with
the criminal justice system as well.
http://www.pomc.com/
Partnership
for Caring: America's Voices for the Dying
A nonprofit organization devoted to raising consumer expectations
for excellent end of life care. Provides counseling information,
publications and videos, advance directives tailored to each
state's legal requirements.
http://www.partnershipforcaring.org/
Pediatric Pain-Science
Helping Children
Offers resources,
inormation and self-help for parents.
http://is.dal.ca/~pedpain/pedpain.html
Project on
Death in America has a mission to understand and
transform the culture and experience of dying and bereavement
through initiatives in research, scholarship, the humanities,
and the arts, and to foster innovations in the provision of
care, public education, professional education,
and public policy.
http://www.soros.org/death/
Robert Wood
Johnson Foundation
The
RWJ Foundation is dedicated to improving the health and health
care of all Americans.
http://www.rwjf.org/
SLAM
(Students Learn about Mortality)
Slam is a prevention initiative of the New Castle County Police
Department Emergency Medical Services Section. The program
is powerful and graphic, and uses the perspective of paramedics
and law enforcement officers to illustrate the consequences
of motor vehicle crashes in our community.
http://www.co.new-castle.de.us/ems/home/webpage3.asp
Sickle Cell
Information Center
http://www.scinfo.org/
Supporting
Kidds: The Center for Grieving Children and Their Families
Resources
to help parents understand what children are going through
concerning death and grieving.
The
mission of Supporting KIDDS is to provide a compassionate
pathway to healing for grieving children and their families,
and to empower the community to support them in the grieving
process.
http://www.supportingkidds.org
Thanatolinks
(links related to death and dying)
http://www.lsds.com/death/
Touchstones
Touchstone provides a supportive environment for children,
adolescents and their families who have experienced the death
of a parent, sibling or close family member. Offers adults
page, kids page and an area to ask questions or post artwork
and writing/poetry.
http://www.touchstonecenter.org/
The
Wellness Community - Delaware
A free program of support, education and hope for people with
cancer and their loved ones. The Wellness Community - Delaware
is dedicated to helping people with cancer and their loved
ones by providing professionally led programs of emotional
support, education and hope as an integral part of conventional
medical treatment. More than 80% of the money they raise goes
directly to programs, and all of their programs are provided
free of charge
.http://www.wellnessdelaware.org/
United
Network for Organ Sharing
(includes become a donor)
http://www.unos.org/
WHYY
Wider Horizons
A wealth of resource information about caring for the dying
and bereaved including a regional listing of support groups,
consumer and professional education, books on end of life
and grief. Resources related to On Our Own Terms: Moyers on
Dying in America.
http://www.widerhorizons.org
Willowgreen
Resources for Loss and Grief (includes videotapes)
http://www.willowgreen.com/
U.S. Department
of Health and Human Services: Tips for Talking to Children
and Adolescents about Disasters.
http://www.mentalhealth.org/cmhs/EmergencyServices/after.asp