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Grief and Loss
Provides extensive information, resources and support including chat rooms, consumer tips, online journaling and information on support groups. Additional resources available to all were added after 9/11/02.
Alive Alone is an organization for the educational and charitable purposes to benefit bereaved parents, whose only child or all children are deceased, by providing a self-help network and publications to promote communication and healing, to assist in resolving their grief, and a means to reinvest their lives for a positive future.
Association of Suicidology
Find everything you need to cope with cancer and its effects. How to stay healthy after treatment and share your experiences. Get facts on cancer, risk factors and prevention.
1599 Clifton Rd., N.E., Atlanta, GA 30329; tel. 800-ACS-2345.
Better Care of the Dying (ABCD)
Every dying person needs to be able to count on excellent care at the end of life. ABCD aims to improve end-of-life care. Site provides news, public policy, resources, reading room and online conferences.
for Death Education and Counseling: A multi-disciplinary
professional organization dedicated to promoting excellence
in death education, bereavement counseling, and care
of the dying.
of American Sickle Cell Disease
of Pet Loss and Bereavement
Before I Die,
Before I Die: Medical Care and Personal Choices premiered on April 22, 1997. The program explores the medical, ethical, and social issues surrounding end-of-life care in America today. This Web companion piece features original reporting (real life stories, sidebars) by health writer Janet Firshein, 1995 Kaiser Media Fellow.
of the USA
This is a nationwide organization designed to aid and support bereaved parents and their families who are struggling to survive their grief after the death of a child. Any bereaved parent, sibling, or grandparent is eligible to become a member of the BP/USA.
A non-profit organization that combines compassionate, personalized support with the latest advances in technology. A free public service to help consumers find local services and internet resources. Located at Three Innovation Way, Suite 210 in Newark, DE 19711. Phone:302-266-8050 or 866-266-7008.
Childhood Cancer Foundation® (CCCF)
CCCF is a national nonprofit membership organization whose mission is to educate, support, serve, and advocate for families of children with cancer, survivors of childhood cancer, and the professionals who care for them. Makes available newsletters, bibliographies, and other materials.
for Grieving Children and Teenagers
The Children's Room offers hope and quality of life to bereaved children and those who are part of their lives. In this safe and caring environment, children, teenagers, and their families can receive the support they need while grieving the death of a loved one.
for Disease Control and Prevention (CDC) is recognized
as the lead federal agency for protecting the health and safety
of people - at home and abroad, providing credible information
to enhance health decisions, and promoting health through
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive. The Compassionate Friends is a national nonprofit, self-help support organization that offers friendship and understanding to bereaved parents, grandparents and siblings. There is no religious affiliation and there are no membership dues or fees.
Corporate Angels Network provides free air transportation for cancer patients traveling to and from recognized treatment centers in the United States without regard to their financial resources.
Hospice International offers information on children's
hospice care. 1-800-24-CHILD
International Project on Palliative/Hospice Services (ChIPPS)
National Hospice and Palliative Care Organization
Offers information on the program to enhance the science and practice of pediatric hospice and palliative care.
City of Hope
Palliative Care Resource Center
The purpose of the COHPPRC is to serve as a clearinghouse to disseminate information and resources that will enable other individuals and institutions to improve the quality of pain management.
Books maintains over 400 resources to help children and
adults through serious illness, death, loss, grief and bereavement.
Reviewed and selected by knowledgeable professionals.
Delaware End-of-Life Coalition
The mission is to strengthen collaboration between the public and professional communities of Delaware regarding end-of-life issues and to serve as an umbrella organization to:
When recovery is no longer possible, Delaware Hospice can help. Focusing on care, not cure, Delaware Hospice ensures that patients and their families receive the care, comfort, and support they need at a time when it's needed most. Pain and symptom management and emotional support are provided in the familiar surroundings of home or a homelike setting (nursing home). The Children's Program provides support to help children and their families who are dealing with the loss of a loved one. "New Hope" is Delaware Hospice's program designed especially for grieving children (see Summer Camps for more information).
The Dougy Center was the first center in the US to provide peer support groups
for grieving children. The Center shares what it has
learned from over 13,500 children, teens and families they've
served since 1982.
Glaser Pediatric AIDS Foundation is the leading worldwide
nonprofit organization dedicated to identifying, funding and
conducting pediatric HIV/AIDS research, and now other serious
and life-threatening diseases affecting children.
The End of
Life: Exploring Death in America
Transcripts; Resources; Bibliography; Readings; Tell Your Story; Feedback. This program is a special series from National Public Radio's All Things Considered.
End of Life
Care for Children and Their Families: Ethical Dimensions
Nursing Education Consortium (ELNEC) Project
The End-of-Life Nursing Education Consortium (ELNEC) project is a comprehensive, national education program to improve end-of-life care by nurses, and is funded by a major grant from The Robert Wood Johnson Foundation. Primary project goals are to develop a core of expert nursing educators and to coordinate national nursing education efforts in end-of-life care.
Our Way: Living with Dying in America
Finding Our Way: Living with Dying in America is a fifteen-week newspaper series which ran September 10 through December 17, 2001. The series was distributed throughout the country by Knight Ridder/Tribune Information Services. The Finding Our Way national public education initiative is focused on bringing practical information to the American public regarding end of life and its surrounding issues.
and Memorial Societies of America (consumer rights organization)
A Consumer's Guide
and Loss Resource Center
It is the hope of this site to provide a place where the issues of grief, grieving, transition, recovery and healing are addressed. Resources for ministers, police, EMS personnel, doctors, nurses, counselors, and other professionals are provided.
an Internet community of persons dealing with grief, death,
and major loss. They have 37 e-mail support groups and two
web sites. GriefNet has an integrated approach to on-line
grief support providing help to people working through loss
and grief issues of all kinds. Their companion site,
KIDSAID, provides a safe environment for kids and their parents
to find information and ask questions.
Many have stories to tell of journeys in grief toward lasting love for a family member, companion or friend. Surely these are among the most precious stories we hold within us. Please share a story on this web site about finding lasting love through grieving. Tell what it has been like to: know and love an irreplaceable someone who has died; reach through the pain of separation; reclaim meaning not canceled by death; and embrace and use legacies left to you.
Growth House is an award winning site with resources about life-threatening
illness and end of life care. Their primary mission is to
improve the quality of compassionate care for people who are
dying through public education and global professional
collaboration. Includes information on helping children
with grief and serious illness.
Offers information to professionals and families about caregiving, terminal illness, loss and bereavement.
Hospice & Palliative Care Federation
The Hospice Federation of Massachusetts provides this booklet to answer your questions and help you navigate this new phase of life. Hospice, they note, may well become one of your most important resources, whether you are a patient, family member or friend seeking to help someone dear to you. Site sponsored by the Robert Wood Johnson Foundation.
addresses patients and families facing life threatening
illness. Resources for patients, caregivers and specific
information on children and teenagers experiencing grief.
Association of Pet Cemeteries
Institute of Ethics
Resource for ethical issue related to death and dying. Has links to the National Reference Center for Bioethics Literature and the BIOETHICSLINE database containing over 9,000 citations related to death and dying issues.
KIDSAID is a safe place for kids to share and to help each other deal
with grief about any of their losses. It's a place to share
and deal with feelings, to show artwork and stories,
to talk about pets, to meet with one's peers. Owned and run
Locks of Love
A charity that provides hairpieces to financially disadvantaged
children under the age of eighteen with medical hair loss.
The fifth documentary in HBO Familys Parent Handbook series, Love, Josh documents a year in the life of a fifteen year old whose father has died from liver cancer. Over the course of a year, starting at his dads memorial service, Josh reveals his feelings to the camera: pain, disbelief, anger, emptiness, as he tries to rearrange the world without his father. As the year passes, Josh comes to realize that memories are his treasures for they're all he has to connect to his father.
Drunk Driving (MADD) looks for effective solutions
to the drunk driving and underage drinking problems, while
supporting those who have already experienced the pain of
these senseless crimes.
Make a Wish
Make a Wish Foundation grants the wishes of children with life-threatening illnesses to enrich the human experience with hope, strength, and joy.
Information on the Veteran's Administration National Cemeteries and other burial benefits.
Center for Death Education
The National Center for Death Education (NCDE) promotes, creates, and disseminates understanding and research in thanatology, the science of death studies. Their mission is to assist people in caregiving professions to develop creative and useful skills for coping and growing with dying, death, bereavement, and loss. The resources of the National Center library are open to students, researchers, and practitioners. The National Center also academically supports the curriculum of The New England Institute of Funeral Service Education at Mount Ida College and individuals seeking continuing professional education in related career fields.
Funeral Directors Association (provides links to caregiving
Hospice and Palliative Care Organization
Provides a search for hospice and palliative care, as well as statistics, resources and information.
of Medicine and the National Institutes of Health offer
Medline Plus Health Information on death and dying. Includes news, research, laws and policies, children issues
and resources in Spanish.
Hospice Association, Inc.
The Oregon Hospice Association is a 501(c)(3) public benefit membership organization dedicated to ensuring that all Oregonians have access to high quality hospice and comfort care.
POMC® provides the ongoing emotional support needed to help parents and other survivors facilitate the reconstruction of a "new life" and to promote a healthy resolution. Not only does POMC help survivors deal with their acute grief, but with the criminal justice system as well.
for Caring: America's Voices for the Dying
A nonprofit organization devoted to raising consumer expectations for excellent end of life care. Provides counseling information, publications and videos, advance directives tailored to each state's legal requirements.
Offers resources, inormation and self-help for parents.
Death in America has a mission to understand and
transform the culture and experience of dying and bereavement
through initiatives in research, scholarship, the humanities,
and the arts, and to foster innovations in the provision of
care, public education, professional education,
and public policy.
The RWJ Foundation is dedicated to improving the health and health care of all Americans.
(Students Learn about Mortality)
Slam is a prevention initiative of the New Castle County Police Department Emergency Medical Services Section. The program is powerful and graphic, and uses the perspective of paramedics and law enforcement officers to illustrate the consequences of motor vehicle crashes in our community.
Kidds: The Center for Grieving Children and Their Families
Resources to help parents understand what children are going through concerning death and grieving. The mission of Supporting KIDDS is to provide a compassionate pathway to healing for grieving children and their families, and to empower the community to support them in the grieving process.
(links related to death and dying)
Touchstone provides a supportive environment for children, adolescents and their families who have experienced the death of a parent, sibling or close family member. Offers adults page, kids page and an area to ask questions or post artwork and writing/poetry.
Wellness Community - Delaware
A free program of support, education and hope for people with cancer and their loved ones. The Wellness Community - Delaware is dedicated to helping people with cancer and their loved ones by providing professionally led programs of emotional support, education and hope as an integral part of conventional medical treatment. More than 80% of the money they raise goes directly to programs, and all of their programs are provided free of charge
Network for Organ Sharing
(includes become a donor)
A wealth of resource information about caring for the dying and bereaved including a regional listing of support groups, consumer and professional education, books on end of life and grief. Resources related to On Our Own Terms: Moyers on Dying in America.
Resources for Loss and Grief (includes videotapes)
of Health and Human Services: Tips for Talking to Children
and Adolescents about Disasters.